Project ENABLE (Educate, Nurture, Advise, Before Life Ends) is a series of studies that have shaped the development of palliative care services in a number of settings.
The ENABLE intervention was designed originally to educate and provide on-going support to patients (from enrollment/diagnosis to death) with life-limiting cancers and their caregivers about symptom management, advance care planning, treatment decision-making, and communication. In developing a program they hoped would be more than "just" an education program, the researchers hoped to “activate” patients by coaching them to enhance their coping and problem-solving skills over the illness trajectory.
In ENABLE II, program developers learned that a phone-based series of educational sessions and care coordination, delivered by a specially-trained nurse was beneficial to patients when they were offered this supportive care intervention soon after diagnosis of cancer. Benefits to patients included improvement in their quality of life and mood while they were living with cancer and its treatment.
Read more about the ENABLE II on the RTIPs repository: http://rtips.cancer.gov/rtips/programDetails.do?programId=3590238 where you can also review and download program materials.
Do you have questions for the ENABLE researchers? What materials do you find useful when working with end-of-life issues? Join the discussion below.